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Survivor Story: Deanna Miller

Posted by Pete Visintin on

Contributed by Pat Obertino

 

Hometown: Coca, Florida

 

Nearly four years ago, Deanna was diagnosed with Scleroderma, an incurable, autoimmune, connective tissue disease.  Scleroderma is a disease that causes hardening and tightening of the skin and connective tissue. 

 

The condition is rare, in that only about 300,000 Americans are afflicted, of which, only about one-third experience the more challenging systemic form Deanna does.  

 

With her husband Mike and 10 year old son Patrick by her side, Deanna remains determined and courageous in her battle.  She has a pacemaker and defibrillator.  As a result, she is no longer able to work.

 

Along with the effects on other parts of her body, the Scleroderma has scarred her heart.  The pacemaker/defibrillator has saved her life a couple times thus far.  

 

At one point she was shocked 23 times in a row as she went through a V-Tach storm.  Then 3 weeks later she was shocked awake while in bed.  This is a very painful occurrence.

 

Besides the loss of her job, her family has many expenses that insurance does not cover including medications, medical equipment, travel/lodging, and other expenses for specialty care only available far from home.  All of which add undue stress to an already undeniably challenging situation.

 

Please know kind thoughts and prayers are always equally welcome, just as the time/care invested in reading this!

 

-Pat

 

More than 50% of the proceeds from all Fight the Fight purchases made from April 16th, 2016 to April 30th, 2016 will be donated to Deanna's family to help cover medical costs. 

 

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