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Survivor Story: Grace Herschelman

Posted by Pete Visintin on

 

Written and Contributed 

by Kyle Herschelman 

 

In November 2014, three-year-old Grace Herschelman was diagnosed with INAD (infantile neuroaxonal dystrophy), a very rare genetic disorder for which there is currently no treatment or no cure. 

 

The disease affects Grace's ability to walk and talk and could also affect her vision in the future.  Although Grace has never walked on her own and has only said a few words, she is a very happy little girl. 

 

 

She loves to smile and laugh.  She attends preschool at the Hillsboro United Methodist Church Preschool, and loves playing soccer, listening to music, and seeing her friends. 

 

Grace is the daughter of Kyle and Mary Herschelman of Hillsboro, who are currently helping to raise funds for a research study at Washington University in St. Louis, MO to look at potential treatment options for this rare disease. 

 

 

There are about 25 known cases of INAD in the entire world, and most children do not live to be ten years old.  Despite her limitations and challenges, Grace shows so much determination, courage, and perseverance each and every day, and brings a great deal of joy to all those she meets.

 

-Kyle


More than 50% of all Fight the Fight purchases made between August 30th, 2015 and September 19th, 2015 will be donated to Grace's family to help cover her medical related expenses and/or to help fund the study at Wash U.

 


Thank you for taking the time to read Grace's story and for supporting Fight the Fight.  You can share this post with your friends by clicking one of the buttons below.....


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