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Survivor Story: Elliott Llewellyn

Posted by Pete Visintin on


Written by Adam & Alison Llewellyn

Contributed by Stephanie Yingling

Elliott Llewellyn is a 4 year old little boy who was diagnosed with Jacobsen Syndrome and Hypoplastic Left Heart Syndrome. 

In his four short years of life, he's undergone an open chest surgery, open heart surgery, and several heart cath procedures. 


While in the waiting period for his Fontan surgery, his heart function worsened, forcing him to be admitted to St. Louis Children's Hospital on November 16th, 2017. 

We are now listed for a heart transplant.

During his wait for a heart, Elliott suffered from strokes, making this process much more complicated. 


We're now listed as a "Status 7" on the transplant list and working towards rehabilitation, so we can eventually get that miracle and take him home!

-The Llewellyn Family

More than 50% of the proceeds from all Fight the Fight purchases made during the month of April 2018 will be donated to Elliott's family to help cover the cost of medical related expenses. 

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  • Thank you Elliott for bringing so much joy, faith and hope to our community and family. Rest In Peace Sweet Boy.

    Megan Lawson and family on

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