Our son Landon Mays was born on September 2nd, 2018 via emergency C Section due to his heart rate dropping. As a result he was diagnosed with Hypoxia Ischemic Encephalopathy.
After being resuscitated for 10 minutes he was immediately put on life support and put under a cooling treatment for 72 hours. Following the cooling process we were told Landon had a very small chance of surviving.
It was emotionally hard to see my baby hooked up to all sorts of machines just to keep him alive. We spent 24 days in the NICU. At just under 3 months old Landon lost his ability to swallow safely.
He is now fed by NG tube until he can either learn to regain his swallow or he has a G-tube procedure done for a more permanent feeding solution.
He is now 4 months old and we are starting to notice some of physical struggles he has. According to his doctors he shows early signs of Central Palsy as he has high tone in his arms and legs. His left ear has permanent hearing loss and his right ear has partial loss.
He has muscle spasms throughout the day that are causing his back to arch to his left and neck turns facing more towards his left (possible Dystonia but haven't gotten the actual diagnosis yet.)
He was diagnosed with Microcephaly (which means almost little to no growth of his brain). He is high risk for seizures based on abnormal EEG studies. His MRI and CT scans show extensive damage to his left parietal lobe and scattered damage to both frontal lobes.
He is seeing an OT and ST through our insurance. He has a home health nurse that checks on his NG tube 3 times a month and we are so grateful for those services!
Just like any parent wants for their child, we want for Landon to thrive in life as much as possible. We would like to seek other intensive therapies. These therapies require traveling and the cost are all out of pocket.
Therapies we would like to do are NAPA therapy (neurological and physical rehabilitation) its in Los Angles, California. The Intensive therapy is 3 weeks long. (Look up NAPA for more info it is awesome!)...Also ABM therapy (Anat Baniel Method) this type of therapy improves the mind and body physically, cognitively, and emotionally by creating new neural patterns that increase strength, flexibility, and vitality.
The any funds raised through Fight the Fight will go to traveling expenses that aren't local. Additional treatments include Chiropractor visits, Necessary equipment as he grows such as special seating chairs, special high chairs/car seat, AFO's, and splints.
But his intensive therapy is most important.
Josh and I are faced with unfortunate circumstances that we were not prepared for. I know GOD has a plan for Landon.
I can't wait to get him started and watch him grow and thrive to his fullest ability so THANK YOU for any and all donations!!!
The proceeds from all Fight the Fight Patreon Pledges and apparel purchases made during the month of June 2019 will be donated to Landon's family to help cover the cost of medical-related expenses.
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